Monday, May 11, 2015

Happy Mom's Day!

The girls in 1987:)

Lyme Awareness

May is actually Lyme awareness month. So here is some "propaganda".

Strongest girl I know! And her two partners in crime, Aubrey and Kelli, taking a bite out of Lyme! These two girls have really come around to support Noelle in the last six months. It is awesome!!

Please continue to pray for Noelle and the hundreds of thousands of people diagnosed with lyme disease each year!


Health-wise our trip to Virginia/DC could have been better timed for Noelle. She was fighting her endometriosis symptoms and for the first time in a year had to have assistance walking. We ended up purchasing her a pink walker for times when she needs to walk/stand for a long time.

But...we certainly did our best to see DC even with Noelle's limited energy:) First stop DC Cupcakes in Georgetown.

Beautiful, yummy and gluten-free!

Next stop the zoo! Then we went to the Holocaust museum and finally Legal Seafood. (I actually wanted to go to the Oceanaire based on memories from the last time we were in DC, but I messed up the name.)


It is hard to sit back and let Lyme steal the active lives of those I love. It is hard for Noelle not to find a way to act. So she and I travelled to Arlington, Virginia to protest the IDSA (Infectious Diseases Society of America). There needs to be better education, research, testing, etc. for Lyme disease. Here are some pictures of our days protesting. Our protest actually closed their offices down. The first day they left at noon and the second day they worked from home. We did not get a lot of media coverage. Possibly because of the ongoing coverage in Baltimore that week.

This quilt represents those fighting lyme and those who have lost their battle with lyme. In the foreground they are tracing to make a chalk outline.

This truck circled the area where we were protesting. The police were very generous and even let us block traffic a couple times.

This whole thing read "IDSA Harms Lyme Patients". Noelle is holding the white sign at the end.

Thursday evening we held a candlelight vigil remembering those that have lost their lives to lyme. Honestly the list was scary long. One of the most recent casualties was a woman in her forties who took her own life. This speaker spoke out to those gathered asking that they reach out to others if they are considering suicide. Suicide and heart issues are two of the most common reasons for death in lyme patients. The chronic pain and neurological issues combine to make it difficult to press on. Each candle had the name of a lyme fighter that had lost their batttle.

Lady Lyme and the Lyme Avenger!!

My favorite thing about the protest was educating people walking by about lyme disease. Many people stopped to accept information. We had personal letters from lymies telling their stories and Mayday pamphlets with lyme information. I think Noelle's favorite part was representing her many friends with lyme who were to sick to attend!