Long week. Noelle is having a pretty good day today but has continued to struggle with anxiety, pain and nausea all week. Tuesday she did not make it through all her treatments, mostly due to anxiety. Yesterday we met with her doctor for our scheduled follow-up.
Her testing for Lyme co-infections, Babesia and Ehrilchosis, was negative. Results for parasites and Candida are still not in. We talked to the doctor about Noelle's continued anxiety. He is hesitant to jump into a treatment without knowing what is going on. So Noelle will do neurotransmitter testing. This will show exactly what levels are affected on things like serotonin, gaba and dopamine (all neurotransmitters).
We also talked to the doctor about trying to balance the length of her treatment days. Mondays, Wednesdays and Fridays are her insulin days and we are there less than three hours. Tuesdays and Thursdays are everything else. If she makes it through all the treatments, we are there about four or five hours. We have started going in for treatment at 8:30 every day. I am hoping this will help Noelle last through more of her treatments on the long days. Yesterday she almost made it through everything. Last IV bag, about a tenth left and she was done! The infrared sauna is supposed to end her day but we have skipped that most days this week.
Ironically, I told the nurse that Noelle never vomits; she just gets super nauseous. Then Noelle had to throw up on the way home from treatment yesterday:( Such tough stuff.
We are officially half way through our eight weeks today! It is getting really long. I hate to be away from family and home for another four weeks. We are anxious for Noelle to show improvement. The doctor said if she is not showing some improvement by the end of next week they will consider changing her protocol. This probably means a change in antibiotics.
We are happy for two day of rest and no treatments! Enjoy the weekend!